huntington’s disease

Power in shared experience: Cheryl Sullivan Staveley

When I was asked to be on Adira’s board of directors at its inception in 2019, the idea of starting out fresh with a brand-new nonprofit foundation was enticing and challenging at the same time. The name Adira means “strong, noble and…


allison-bartlett-hdsa

Disability education program growing in pandemic

Before we had much shape or form, Adira saw a need and acted through a test pilot grant to the Huntington’s Disease Society of America (HDSA) in 2019 so they could build a program to educate social workers and Huntington’s disease (HD) families…