Adira is inviting Letters of Intent for its third round of competitive grants. To help make it our largest round yet, we’re inviting cofinancing from other donors.

Adira Foundation grants go to qualified nonprofits in the U.S. to address the pervasive worries that people impacted by neurodegenerative diseases share—worries that funding often misses, because they are too big and complex for any one entity to solve alone.

People share these worries with us throughout a listening period held during each grant cycle. In 2021 we heard from the largest array of people impacted by neurodegenerative diseases and caregivers yet.

Here are the priorities we heard through collective listening and learning:

  1. Simplifying clinical research

    What clinical research trials are out there? Does a better, simpler mapping of what and where they are exist?

  2. Preparing for future threats to livelihood

    How do I prepare for how this diagnosis might impact my future, from multiple vantage points like housing, financing, mental health or potential career changes?

  3. Thriving again in common pursuits

    How do I fight the drift of isolation and flourish better with the friends, hobbies and interests that make me feel my best?

Inviting perspectives from people impacted

Adira designs programming by including the points of view of people most impacted early, often and throughout our work. For grants, we do this by:

  • Directly asking people impacted to weigh in.
  • Learning from a growing bank of needs assessments and published reports.
  • Prioritizing grant awards that incorporate listening.
  • Ensuring the majority of seats on the application review committee are people most impacted.
Learn more about round three and how to submit a Letter of Intent here.

Bigger and better than ever

With each round of grants, Adira has grown its reach and improved its process. Here’s how:

  1. We’ve listened to a wider, more diverse group of people.
  2. We talked to every applicant that we could, even those who didn’t receive grants, and applied their feedback about our process to make it better, smoother and more rigorous.
  3. We grow our target for total grant money targeted to distribute with each round.
  4. Round three is the debut of a cofinancing model to bring new resources to the table and make a deeper difference.

1. Listening

For round three, we included five times more people and data in our listening than in round two. Adira gathered input from nearly 2,000 people through:

  • Nine Adira-hosted events for people with neurodegenerative diseases and caregivers, and professionals (attended by 211 people).
  • Reports from each round two grantee on their project-related listening activities (1,013 people engaged).
  • Five needs assessments from national or regional organizations directly reaching people with neurodegenerative diseases and/or their caregivers (631 engaged).

2. Increased rigor of grant review

Independent grant review will include not only the career expertise of professionals in neurodegenerative disease, but the lived expertise of patients and caregivers as well.  The majority of grant reviewers will be people most impacted. In addition, we enhanced the grant design based on:

  • One-on-one conversations with nearly all 34 applicants in round two.
  • Internal review of best practices of similar working public foundations.
  • Additional research into outcomes evaluation and quality of life metrics.

3. Total grant target

We’ve increased our target for how much we’ll award in grants.

  • Round one: $100,000
  • Round two: $360,000
  • Round three: Goal of $500,000
    Adira is seeding the first $250,000 and pursuing cofinancing of $250,000. Join the effort by emailing giving@adirafoundation.org or donate online now.

4. Debut of a cofinancing model

Round three has grown not only in reach, input and scope, but it will also pilot our first cofinancing model.

Sustainability for large-scale integrated programs demands a diverse constellation of donors who are invited not only to contribute financing but contribute their points of view on the funding model’s design so that we might strive for the best possible standards of objectivity, transparency, accountability, equitability, monitoring, evaluation, reporting, and results-based evolution. Multiple donors from both traditional and non-traditional sources will provide the tensile strength these integrated programs need for consistent, dependable sources of long-range planning and financing.

Adira is piloting this on a small scale now with a modest request for an additional $250,000 in matching contributions. How well this round succeeds will inform next year’s program design and beyond.

Learn more about round three and how to submit a Letter of Intent here.
Give here toward round three and support even more people with neurodegenerative diseases.