Sisters Cinzia Bishop and Chiara Moore’s conversation is part of our series produced in partnership with StoryCorps to help change the narrative around neurodegenerative disease. 

Cinzia talked with her sister about her MS advocacy

In this conversation, sisters Cinzia Bishop, 28, and Chiara Moore, 30, talk about how Cinzia’s multiple sclerosis diagnosis has shaped her young adulthood. Symptoms began when she had just graduated from college, gotten engaged and landed a new job.

It shifted the way she thought about her future.

Since then she’s become a fierce advocate for MS awareness because she doesn’t want others to feel the same sense of “total isolation” that she did early in her disease journey. And she’s brought her sister along for the ride.

Listen to the conversation

From the recording:

CINZIA: I remember going to a neurologist to assess the damage to my spinal cord at that time and I remember him looking at me and saying: You’re lucky you’re walking. and just being so in shock. I had just gotten married. I was 25 years old. What do you mean I’m lucky to be walking? It was terrifying.

But like I said, with the help of getting on the right medications, I’ve been very fortunate in that we’ve been able to keep my health pretty stable, and I’ve been able to focus my attention on advocating and sharing my story.

CHIARA: Yeah and I think you do share your story often and loudly—which is great. But what is your motivation for doing that?

CINZIA: My motivation for doing that comes completely from that feeling I had of complete and total isolation in that moment of receiving my diagnosis. In not knowing anybody else going through it, in not knowing exactly what was going to happen next, in not knowing what to expect or where to turn, who to talk to. I don’t ever want anybody else to feel that way. So I love to tell my story. I shout it from the rooftops. I have gotten myself very involved—to be that advocate that I didn’t have in that moment in that darkest day.

More about Sophia

Sophia Rodriguez

Sophia Rodriguez is a board certified genetic counselor specializing in Alzheimer’s disease research in the Latino population with a passion for healthcare advocacy for the underserved. Her work experience includes research and clinical trials for gene therapy for inherited retinal disease, as well as consulting and creating educational content for early-onset Alzheimer’s disease aimed to reach Hispanic communities. She is also committed to raising Alzheimer’s awareness and support for policy changes.

Sophia has a master’s degree from the Joan H. Marks Graduate Program in Human Genetics at Sarah Lawrence College. She grew up in Cliffside Park, New Jersey and loves anything related to cats, coffee, and food, and enjoys cooking, working out, and watching documentaries on just about anything.

Thanks to our friends at Our Odyssey for introducing us to Cinzia. Our Odyssey’s mission is to connect young adults impacted by a rare or chronic condition with social and emotional support in the hope of improving their quality of life. Get involved with them at