Our grantees are working on a range of projects to better the lives of people with neurodegenerative diseases.

Fast-Track Response: COVID-19 Grantees

Our first round of funding was an emergency response to COVID-19 launched in April 2020. Projects are still underway. Learn more here. The grantees are:

Grant amount: $8,216

Communities served: People with ALS and their caregivers in Maryland, Virginia, and Washington, D.C.

This project transitions vital programming to virtual, including support groups, home visits, evaluations and caregiver training.

Grant amount: $10,000

Communities served: A nationwide network of chapters and referral institutions serving people living with Parkinson’s disease and their caregivers.

This project provides direct financial assistance for expressed needs of people living with Parkinson’s disease nationwide, including medication, respite care, emergency rent, mortgage, utilities, groceries, childcare and transportation.

Grant amount: $9,741

Communities served: People with Alzheimer’s disease and their caregivers living in the Houston, Texas, area.

This project transitions vital programming to virtual, including weekly virtual educational programs, wellness activities, and mental/emotional health programs.

Grant amount: $10,000

Communities served: People living with neuromuscular diseases in Colorado.

This project provides direct financial aid based on expressed needs, as well as coordination and support services to CCC member organizations.

Grant amount: $10,000

Communities served: People in the Huntington’s disease community nationwide.

This project will convert HDSA’s annual convention into a free-to-attend virtual experience, creating and distributing a wide-reaching free library of educational content.

Grant amount: $2,475

Communities served: People with Huntington’s disease and their caregivers living in North Carolina.

This project transitions vital programming to virtual, including caregiver skills training, wellness, emergency safety and preparedness, and secondary caregiver outreach and training.

Grant amount: $3,770

Communities served: People living with Parkinson’s disease in Northeast Ohio.

This project transitions vital programming to virtual, including support groups, pre-recorded exercise videos, live online wellness classes.

Grant amount: $10,000

Communities served: National network of people living with multiple sclerosis and their families.

This project provides direct financial assistance for expressed needs, including emergency rent, mortgage, utilities, groceries, and home equipment, as part of the MS Navigator Program.

Grant amount: $7,325

Communities served: People with Alzheimer’s disease, multiple sclerosis or Parkinson’s disease with service animals who live in Florida.

This project provides emergency financial aid to service dog owners for needs including food, medications, diagnostics and procedures.

Grant amount: $7,500

Communities served: People living with Parkinson’s disease and their caregivers in Oregon and southwest Washington.

This project transitions vital programming to virtual, including support groups and exercise classes. It also provides community outreach to assess needs.

Grant amount: $10,000

Communities served: People living with multiple sclerosis in the Westminster, Colorado, area.

This project transitions vital programming to virtual, including bi-annual educational summit, support meetings, counseling sessions and regular MS conversations.

Grant amount: $10,000

Communities served: People living with ALS, Alzheimer’s disease, Huntington’s disease, multiple sclerosis or Parkinson’s disease in the Rocky Mountain region.

This project transitions vital programming to virtual, including wellness assessments, appointments with specialists, referrals and technology training.