Our grantees are working on a range of projects to better the lives of people with neurodegenerative diseases.

Grant amount: $60,000

Communities served: Alzheimer’s and Parkinson’s and caregivers in Central and Eastern Maine.

This project pulls together extensive existing programming for people with Alzheimer’s and Parkinson’s—arts, exercise, a speaker series, nutrition, etc.—into one, holistic care coordination program specific to neurodegenerative diseases. The service will provide free transportation and recruit more participants from the surrounding region. The program will serve as a model for other Ys throughout the region to replicate.

Focus areas: Caregiver mental health, care coordination, community resource sharing.

Grant amount: $75,000

Communities served: ALS, Alzheimer’s, Huntington’s, MS and Parkinson’s and caregivers.

Compassionate Care ALS will offer an opportunity for current and former ALS families to volunteer as caregivers for other families through a structured, community-building training program. It consists of yearlong curriculum, including a two-day intensive workshop discussing end-of-life work, language, listening, grieving and trauma.

Focus areas: Caregiver mental health, care coordination, community resource sharing.

Grant amount: $75,000

Communities served: ALS, Alzheimer’s, Huntington’s, MS and Parkinson’s and caregivers in Colorado.

This project will establish a statewide care coordination and assistance network focused on cost savings by maximizing extensive community resources and health care benefits. People can access the program through provider referrals, a consumer helpline, and a coordinated referral program across Colorado nonprofits serving the neurodegenerative community.

Focus areas: Caregiver mental health, care coordination, community resource sharing.

Grant amount: $75,000

Communities served: ALS, Alzheimer’s, Huntington’s, MS and Parkinson’s and caregivers in the San Francisco Bay area.

This project will pilot an education and direct support program for neurodegenerative disease caregivers starting in the Bay area. It will develop and deliver a class curriculum on caregiver mental health that reflects what ND caregivers express as needs in three listening sessions FCA will host in coordination with local ND groups. Curriculum will be made available for local ND organizations to use.

Focus areas: Caregiver mental health, care coordination, community resource sharing.

Grant amount: $75,000

Communities served: ALS families and caregivers nationally.

This grant will scale the I AM ALS Navigation program and build two complementary initiatives: the Peer Support Initiative, to connect patients and caregivers, and the Caregivers Platform, an online tool to find affordable home health care workers with ALS experience. The I AM ALS Navigation expansion will address referral gaps, help ease transitions between services and ease burden for ALS families seeking help.

Focus areas: Caregiver mental health, care coordination, community resource sharing.

Our first round of funding was an emergency response to COVID-19 launched in April 2020. Projects are still underway. Learn more here. The grantees are:

ALS Association DC/MD/VA Chapter

Grant amount: $8,216

Communities served: People with ALS and their caregivers in Maryland, Virginia, and Washington, D.C.

This project transitions vital programming to virtual, including support groups, home visits, evaluations and caregiver training.

American Parkinson Disease Association

Grant amount: $10,000

Communities served: A nationwide network of chapters and referral institutions serving people living with Parkinson’s disease and their caregivers.

This project provides direct financial assistance for expressed needs of people living with Parkinson’s disease nationwide, including medication, respite care, emergency rent, mortgage, utilities, groceries, childcare and transportation.

BakerRipley

Grant amount: $9,741

Communities served: People with Alzheimer’s disease and their caregivers living in the Houston, Texas, area.

This project transitions vital programming to virtual, including weekly virtual educational programs, wellness activities, and mental/emotional health programs.

Chronic Care Collaborative

Grant amount: $10,000

Communities served: People living with neuromuscular diseases in Colorado.

This project provides direct financial aid based on expressed needs, as well as coordination and support services to CCC member organizations.

Huntington’s Disease Society of America

Grant amount: $10,000

Communities served: People in the Huntington’s disease community nationwide.

This project will convert HDSA’s annual convention into a free-to-attend virtual experience, creating and distributing a wide-reaching free library of educational content.

HD Reach

Grant amount: $2,475

Communities served: People with Huntington’s disease and their caregivers living in North Carolina.

This project transitions vital programming to virtual, including caregiver skills training, wellness, emergency safety and preparedness, and secondary caregiver outreach and training.

InMotion

Grant amount: $3,770

Communities served: People living with Parkinson’s disease in Northeast Ohio.

This project transitions vital programming to virtual, including support groups, pre-recorded exercise videos, live online wellness classes.

National Multiple Sclerosis Society

Grant amount: $10,000

Communities served: National network of people living with multiple sclerosis and their families.

This project provides direct financial assistance for expressed needs, including emergency rent, mortgage, utilities, groceries, and home equipment, as part of the MS Navigator Program.

New Horizons Service Dogs

Grant amount: $7,325

Communities served: People with Alzheimer’s disease, multiple sclerosis or Parkinson’s disease with service animals who live in Florida.

This project provides emergency financial aid to service dog owners for needs including food, medications, diagnostics and procedures.

Parkinson’s Resources of Oregon

Grant amount: $7,500

Communities served: People living with Parkinson’s disease and their caregivers in Oregon and southwest Washington.

This project transitions vital programming to virtual, including support groups and exercise classes. It also provides community outreach to assess needs.

Rocky Mountain MS Center

Grant amount: $10,000

Communities served: People living with multiple sclerosis in the Westminster, Colorado, area.

This project transitions vital programming to virtual, including bi-annual educational summit, support meetings, counseling sessions and regular MS conversations.

University of Colorado, Anschutz Medical Campus Department of Neurology, Section of Neuro-Palliative Care

Grant amount: $10,000

Communities served: People living with ALS, Alzheimer’s disease, Huntington’s disease, multiple sclerosis or Parkinson’s disease in the Rocky Mountain region.

This project transitions vital programming to virtual, including wellness assessments, appointments with specialists, referrals and technology training.