Our grantees are working on a range of projects that invest in better the lives for people with neurodegenerative diseases. Through our grant programs, we are committed to prioritizing the point of view of the people neurodegenerative diseases affect most: patients, families, and caregivers. Learn more on the Grants page.

Program: Fast-Track COVID-19 Response

A fund opened in March for 501(c)(3) nonprofits with programming for people living with ALS, Alzheimer’s disease, Huntington’s disease, multiple sclerosis, Parkinson’s disease and/or their caregivers in response to needs created from the national COVID-19 crisis. By mid-April, $100,000 were allocated to the following 12 organizations. 

Grantees

ALS Association DC/MD/VA Chapter

Grant amount: $8,216

Communities served: People with ALS and their caregivers in Maryland, Virginia, and Washington, D.C.

This project transitions vital programming to virtual, including support groups, home visits, evaluations and caregiver training.


American Parkinson Disease Association

Grant amount: $10,000

Communities served: A nationwide network of chapters and referral institutions serving people living with Parkinson’s disease and their caregivers.

This project provides direct financial assistance for expressed needs of people living with Parkinson’s disease nationwide, including medication, respite care, emergency rent, mortgage, utilities, groceries, childcare and transportation.


BakerRipley

Grant amount: $9,741

Communities served: People with Alzheimer’s disease and their caregivers living in the Houston, Texas, area.

This project transitions vital programming to virtual, including weekly virtual educational programs, wellness activities, and mental/emotional health programs.


Chronic Care Collaborative

Grant amount: $10,000

Communities served: People living with neuromuscular diseases in Colorado.

This project provides direct financial aid based on expressed needs, as well as coordination and support services to CCC member organizations.


Huntington’s Disease Society of America

Grant amount: $10,000

Communities served: People in the Huntington’s disease community nationwide.

This project will convert HDSA’s annual convention into a free-to-attend virtual experience, creating and distributing a wide-reaching free library of educational content.


HD Reach

Grant amount: $2,475

Communities served: People with Huntington’s disease and their caregivers living in North Carolina.

This project transitions vital programming to virtual, including caregiver skills training, wellness, emergency safety and preparedness, and secondary caregiver outreach and training.


InMotion

Grant amount: $3,770

Communities served: People living with Parkinson’s disease in Northeast Ohio.

This project transitions vital programming to virtual, including support groups, pre-recorded exercise videos, live online wellness classes.


National Multiple Sclerosis Society

Grant amount: $10,000

Communities served: National network of people living with multiple sclerosis and their families.

This project provides direct financial assistance for expressed needs, including emergency rent, mortgage, utilities, groceries, and home equipment, as part of the MS Navigator Program.


New Horizons Service Dogs

Grant amount: $7,325

Communities served: People with Alzheimer’s disease, multiple sclerosis or Parkinson’s disease with service animals who live in Florida.

This project provides emergency financial aid to service dog owners for needs including food, medications, diagnostics and procedures.


Parkinson’s Resources of Oregon

Grant amount: $7,500

Communities served: People living with Parkinson’s disease and their caregivers in Oregon and southwest Washington.

This project transitions vital programming to virtual, including support groups and exercise classes. It also provides community outreach to assess needs.


Rocky Mountain MS Center

Grant amount: $10,000

Communities served: People living with multiple sclerosis in the Westminster, Colorado, area.

This project transitions vital programming to virtual, including bi-annual educational summit, support meetings, counseling sessions and regular MS conversations.


University of Colorado, Anschutz Medical Campus Department of Neurology, Section of Neuro-Palliative Care

Grant amount: $10,000

Communities served: People living with ALS, Alzheimer’s disease, Huntington’s disease, multiple sclerosis or Parkinson’s disease in the Rocky Mountain region.

This project transitions vital programming to virtual, including wellness assessments, appointments with specialists, referrals and technology training.