As we look forward to Neuro Health Equity: Let’s Talk, our April 15 conversation on disparities and equity in our communities, we want to highlight some lived experiences we’ve heard from people in our community.

We’d love you to join us to hear more experiences with racial equity and disparities—and share your own. If you can’t attend, or would rather share privately or ahead of time, now’s your chance.

Jacquelyn and Veronica

"We don’t know we don’t have access to a lot of stuff"

Jacquelyn is a caregiver for her mother, who has Alzheimer’s disease. She sat down with a friend who is also a millennial caregiver, Veronica. Veronica’s mother has multiple sclerosis. They discussed some health disparities facing Black people.

From Veronica: “Cancer, heart disease—all the bad diseases—we’re twice as likely to have everything. … our conditions, where we live, how much money, the education, we don’t have access to a lot of stuff, we don’t know we don’t have access to a lot of stuff.”

View the conversation in the animation.

Sophia and Ericka Rodriguez

From familial, early-onset Alzheimer's caregiver, to genetic counselor

Sophia Rodriguez became a genetic counselor specializing in Alzheimer’s disease research in the Latino population after learning her mother had a familial form of early-onset Alzheimer’s disease. As part of Adira’s StoryCorps project, Sophia spoke with her sister Ericka about living with and caring for a mother who began showing signs of Alzheimer’s in her late 40s.

Listen to the whole StoryCorps conversation, “For Two Sisters, Familial Alzheimer’s Means Two Different Paths.”

neuro health equity - sophia's story
Eva R.

"This isn't exactly my job..."

Eva is a licensed vocational nurse assigned to keep an eye on a veteran with Huntington's disease. She shared with Adira how she made the best of her situation.

From Eva: "[This] isn’t exactly my job, but instead of feeling down, degraded and sorry for myself, I have chosen to find the best in this assignment."

You can find Eva’s story here: “A Nurse’s Story: My Heart Overwhelmed with Joy.”

a nurse's story
neuro health equity - Joe Sparkman
Joe Sparkman

"What saved me is I had my first black doctor..."

“What saved me was I had my first black doctor. When I first got her as a doctor I didn’t know that I was supposed to be treated so kindly. I didn’t know that doctors didn’t interrupt you after they asked you a question. I didn’t know that doctors weren’t so quick to cut you off—it was just a whole different experience.”

From “Meet Joe Sparkman: A StoryCorps Conversation.”