At Adira, sharing your lived experiences impacts real change.

Listening is the heart of our approach—listen, learn, act—which means the point of view of the people most impacted by neurodegenerative diseases comes first in everything we do.

We hear from and engage with people living with our five focus diseases and their loved ones and caregivers in many ways: events, stories, surveys, volunteer and paid positions, and more. You can find all of them here.

You can help us.

Join our grant review committee for our fall 2021 grants. Selected participants will be paid $1,000 each. Contact the programs department using the button below for more information or to express interest.

Join the Committee

Make Your Voice Heard


Sounding Board

Join our Sounding Board, a low commitment way to offer feedback however you'd like.

Join the Board

Patient Survey

Are you a person living with a neurodegenerative disease or a caregiver? Share your insights on what we should be funding in this 10-minute survey.

Take the Patient Survey

Professional Survey

Take the survey below on measuring quality of life in ND. Learn more here.

Take the Professional Survey

Upcoming Events

We're Here to Listen

We’re always looking for ways to gather information from our community. Check out some of our upcoming listening events below.

Listening Event

Round Two: Grantee convening

December 2021

Listening Event

Coming in January: Pilot ND Congress

January 2022

Past Events

What We Heard

Find out more about the listening activities we’ve completed so far to inform our program priorities.