At Adira, sharing your lived experiences impacts real change.

Add your voice today! You can:

  • Join our Sounding Board, a low commitment way to offer feedback however you’d like.
  • For professionals: July 21, 11:30 a.m. ET we’ll host Let’s Talk: Measuring Quality of Life in ND, a conversation about coming to a shared measurement tool for quality of life in neurodegenerative disease. We’ll share findings from a review of over 50 QoL tools. Register here.
  • Share your insights on what we should be funding in this 10-minute survey.
    More about the survey: If you are a person living with a neurodegenerative disease (ND) or a caregiver, Adira needs to hear from you. Your opinions and experiences directly inform our programs. We look to fund organizations that provide the best solutions to the things you say you need the most. This survey asks questions about your experience navigating the health care and social care systems, including the kind of programs you think work best.

Find out more about the listening activities we’ve completed so far to inform our program priorities: