At Adira, sharing your lived experiences impacted real change.

Listening was the heart of our approach—listen, learn, act—which means the point of view of the people most impacted by neurodegenerative diseases came first in everything we did.

We heard from and engaged with people living with our five focus diseases and their loved ones and caregivers in many ways: events, stories, surveys, volunteer and paid positions, and more. You can find all of them here.


Neurodegenerative Disease (ND) Congress

Designing Solutions for Common Needs

Learn more about the Neurodegenerative Disease (ND) Congress series which designed solutions for common needs alongside people living with neurodegenerative disease, care partners, and professionals.

More About the Series

You can help us.

Join our grant review committee for our fall 2021 grants. Selected participants will be paid $1,000 each. Contact the programs department using the button below for more information or to express interest.

Join the Committee

Make Your Voice Heard

Sounding Board

Join our Sounding Board, a low commitment way to offer feedback however you'd like.

Join the Board

Patient Survey

Are you a person living with a neurodegenerative disease or a caregiver? Share your insights on what we should be funding in this 10-minute survey.

Take the Patient Survey

Professional Survey

Take the survey below on measuring quality of life in ND. Learn more here.

Take the Professional Survey

Our Events

We're Here to Listen.

We’re always looking for ways to gather information from our community. Learn more about our events here.

Attend an Event