On July 21, 2021, we brought together professionals from more than 30 organizations to discuss measuring quality of life in neurodegenerative disease.

Adira invited a diverse group of professionals interested in measuring quality of life in people most impacted by neurodegenerative diseases (ND) to join us in a discussion exploring the landscape of existing quality of life assessment tools and the value of creating a common standard to measure quality of life in ND on a broad scale.

At the event, we:

  • Presented findings from our analysis of 50 existing quality of life assessment tools.
  • Provided recommendations to create a common standard of quality of life metrics.
  • Provided recommendations to create a shared evaluation process across ND
    stakeholders to assess quality of life impact in ND on a broad, systems-wide scale.
  • Gathered insights and comments from ND professionals on the purpose, practicality, and practices of measuring quality of life in ND groups.

ND Network Map

Patient Network Map

Here’s more text if needed. Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Duis aute irure dolor in reprehenderit in voluptate velit esse cillum dolore eu fugiat nulla pariatur.

Here’s more text if needed. Lorem ipsum dolor sit amet, consectetur adipiscing elit, sed do eiusmod tempor incididunt ut labore et dolore magna aliqua. Ut enim ad minim veniam, quis nostrud exercitation ullamco laboris nisi ut aliquip ex ea commodo consequat. Duis aute irure dolor in reprehenderit in voluptate velit esse cillum dolore eu fugiat nulla pariatur.