Shape change for neurodegenerative disease

Are you interested in weighing in on solutions for people with ALS, Alzheimer’s and related dementias, Huntington’s, multiple sclerosis and Parkinson’s? We want to hear from you!

We are actively recruiting people to directly inform our priorities on an ongoing basis. We’re seeking people living with a neurodegenerative disease and ND caregivers.

We’d love to have you.

We are compiling a group of low-commitment influencers we’re calling the “Sounding Board.”

We want to hear from all people interested in taking part about what you want to do. If you’re ready to join us, fill out this short survey. If you want to know more, share any questions you have below.

As part of the Sounding Board you can:

• Provide your opinion about Adira’s programs and projects: the ND Network Map, our Take Care caregiving resource, our summer convening, and round three of our Pervasive Needs Grants.
• Choose how you are contacted, about what, and how often.
• Offer feedback on the topics you choose including: demonstration projects, grantmaking (what and who we fund), community events and engagement, or health equity issues.