Power in shared experience: Cheryl Sullivan Staveley
December 14, 2020Our story,About Adira,Stories,Listeninghuntington's disease,board of directors,yearend
When I was asked to be on Adira’s board of directors at its inception in 2019, the idea of starting out fresh with a brand-new nonprofit foundation was enticing and challenging at the same time. The name Adira means “strong, noble and…
Meet Joe Sparkman: A StoryCorps conversation
December 11, 2020Stories,ListeningStoryCorps,multiple sclerosis,yearend
Joe Sparkman is part of our series of conversations produced in partnership with StoryCorps to help change the narrative around neurodegenerative disease. Julián Esteban Torres interviewed his friend Melvin "Joe" Sparkman about living with…
Sandy’s story: One of courage, determination and hope
December 3, 2020About Adira,Stories
Sandy Rock, 1949-2020 Sandy Rock left this earth as she lived it, with gratitude and with a legacy of comforting others and giving hope for a brighter day. Like many people who live with complex health conditions, Sandy faced each day with a…
Adira featured in Inside Philanthropy
November 11, 2020Latest news,In the news
Inside Philanthropy, a news source that covers how and why foundations and major donors give away their money, recently featured Adira Foundation. Journalist Paul Karon interviewed Adira Founder and CEO Greg Smiley as well as board member Alan…
InMotion: Keeping people with Parkinson's moving during a pandemic
October 28, 2020Stories,Grantees
By Cathe Schwartz, InMotion CEO InMotion, a nonprofit organization located in Cleveland, Ohio, is at the forefront of community-based programming for people with Parkinson’s disease. Since opening our doors in 2015, InMotion has grown to serve…
Adira launches $250k-plus grant program on caregiving, mental health and resource sharing
October 15, 2020Latest news,Media release,Programs
Adira Foundation launched its second round of competitive funding today, the Fall 2020 Pervasive Needs Grants. The program offers funding in direct response to priorities named by people impacted by ALS (amyotrophic lateral sclerosis),…
Adira Foundation announces two board additions
October 7, 2020About Adira,Latest news,Media release
RICHMOND, VIRGINIA — Adira Foundation announced today the appointment of two board members: Cynthia Gómez, behavioral health scientist and health equity consultant, and Todd Evenson, president of access.mobile, International and founder of…
Mental health and care coordination top list of concerns for ND organizations
September 14, 2020Latest news,Listening
Fourteen people representing 12 Fast-Track COVID-19 Grant Response grantee organizations joined Adira in July for a roundtable convening on how their projects have unfolded since April. The group offered rich discourse, highlighted what they’d…
Disability education program growing in pandemic
August 25, 2020Latest news,Granteeshuntington's disease,SSDI,SSI,disability,HDSA
Before we had much shape or form, Adira saw a need and acted through a test pilot grant to the Huntington’s Disease Society of America (HDSA) in 2019 so they could build a program to educate social workers and Huntington’s disease (HD) families…
New partnership to develop neurodegenerative disease resource directory
August 17, 2020Latest news,Media releasenavigation,resources
Adira Foundation and VirginiaNavigator partnership will build neurodegenerative disease resource directory for easier service access RICHMOND, VIRGINIA —access comprehensive information on programs and services for people diagnosed with…