Mental health and care coordination top list of concerns for ND organizations

Fourteen people representing 12 Fast-Track COVID-19 Grant Response grantee organizations joined Adira in July for a roundtable convening on how their projects have unfolded since April. The group offered rich discourse, highlighted what they’d…


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Disability education program growing in pandemic

Before we had much shape or form, Adira saw a need and acted through a test pilot grant to the Huntington’s Disease Society of America (HDSA) in 2019 so they could build a program to educate social workers and Huntington’s disease (HD) families…


neurodegenerative disease resource directory

New partnership to develop neurodegenerative disease resource directory

Adira Foundation and VirginiaNavigator partnership will build neurodegenerative disease resource directory for easier service access  For the first time, Virginia residents will be able to easily access comprehensive information on programs and…


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Supporting Coloradans living with NDs during COVID-19

By Sara Froelich of the Chronic Care Collaborative  Everyone is at risk of developing COVID-19. But, those with chronic diseases such as diabetes and dementia have a higher chance of developing severe symptoms—and of dying from the virus.…


Mothers are taking on even more caregiving. Let’s honor them

As the pandemic upends our social structures, the role of mothers—the way they are viewed or valued, as well as their responsibilities—is shifting. This shift comes from a pre-pandemic reality: women make up at least 75 percent of caregivers,…


Adira’s fast-track grantees: Vital services amid COVID-19

Over the last two weeks, Adira Foundation awarded fast-track COVID-19 response grants to 12 organizations providing vital care and wellness services for people with Alzheimer’s disease, ALS, Huntington’s disease, multiple sclerosis, and…


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Visiting support groups: What we’re learning

Over the last few months, Adira was visiting support groups in our region to hear from people living with neurodegenerative diseases and their caregivers—ensuring the point of view of people living with neurodegenerative diseases is what shapes…


Covid-19: Where to turn for information and support

The coronavirus pandemic is reaching into most aspects of our daily lives. In response, we want to make sure everyone in Adira’s community knows where to turn for information and support. Both the World Health Organization and the Centers for…


Neurodegenerative disease impacts almost everyone. Let's show how.

Most people are impacted by neurodegenerative disease—ND—at some point in their lives. You may have one yourself—more than 8 million people live with one of the five diseases that Adira represents: Alzheimer's disease, ALS, Huntington's…


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Adira is listening

At Adira, February is shaping up to be a month of listening. Listening to hear what people with neurodegenerative diseases are experiencing is a crucial part of our model. We don't want to design any programming without first listening and…