Over the last two weeks, Adira Foundation awarded fast-track COVID-19 response grants to 12 organizations providing vital care and wellness services for people with Alzheimer’s disease, ALS, Huntington’s disease, multiple sclerosis, and Parkinson’s disease and their caregivers.

Now, Adira is calling on individuals, businesses and other community partners to help keep the fast-track response going.

Original fast-track dollars allocated

Adira announced its fast-track grants for organizations serving neurodegenerative disease (ND) populations with a COVID-19 response program in late March. Within a week of turning around decisions in the program’s 48-hour review window, Adira had allocated each of the original $50,000 response dollars. But applications were still coming in.

The quality of applications was impressive, according to Program Manager Lauren Ruiz. She said organizations are acting quickly to fill urgent needs for people isolated at home and living with or caring for someone with neurodegenerative diseases.

“People living with these five diseases are facing high risk during this crisis,” Ruiz said. “Many are in age groups where COVID-19 could be more severe, and all of them could see neurodegenerative disease symptoms worsen without necessary care and wellness services.”

Seeing the quality of projects and high level of need, staff made the quick decision to rearrange budgeted funds to double the original funding to $100,000.

As a result, Adira is announcing 12 grantees with programs responding to COVID-19-related needs in one or more of Adira’s five neurodegenerative disease communities.

Find details of each project on our Grantee page.

Help keeping the project going

Though the now-$100,000 fund is allocated, CEO and Founder Greg Smiley said Adira is committed to finding more ways to support these and other organizations as funding comes in.

“We turned off the tap at $100,000 to take a breather,” Smiley said. “We are now quickly assessing how we might take stock of what we’ve done, see how we can do it better, and see how we can bring others along with us.”

He is calling on community partners—businesses, organizations and individuals—to contribute to help keep the project going. Adira is committed to continue investing in the fast-track program—with additional contributions from the community extending its reach.

“We need your help,” he said. “We have to continually widen the circle to build this more communal world we all want to live in. Adira is very intentional in placing funds into the hands of those who provide help in critical moments. We are truly operating right now in a fast-track mode.”

Donors interested in partnering on this project can contribute here.

Grantee projects serving all five ND communities

Adira is pleased to announce its first 12 grantees include projects across the country from Oregon to Florida and among them aim to serve all five disease communities, including caregivers. Three projects serve multiple disease groups.

Many projects are transitioning vital wellness programming online including counseling sessions, exercise classes, specialist appointments, support group meetings and more. Other projects are providing emergency grants to individuals with neurodegenerative diseases who need help with things like rent, food, utilities and copays during this time.

Below are the organization names and websites.

You can find more about each project on our Grantee page.