Adira is a national tax-exempt 501(c)(3) public foundation that was founded in 2019 and is headquartered in Richmond, Virginia.

Our mission is to invest in better lives for people with neurodegenerative diseases.

Initially, Adira will focus on five neurodegenerative diseases that are highly complex and have much in common: Alzheimer’s disease, ALS (amyotrophic lateral sclerosis), Huntington’s disease, multiple sclerosis, and Parkinson’s disease.

Adira Patient Circle Graphic

Adira’s accomplished executive team brings decades of collective nonprofit and health sector experience. Adira is led by a Board of Directors with experience in medicine, nonprofits, communications, governance and management, advocacy, and coalition building. View board member bios here.

Adira is addressing the isolating nature of navigating health care. No one goes to school to be a patient, and when you have a complex neurodegenerative disease, finding your way can be particularly scary and lonely. Today, most programs are siloed and segmented, each narrowly focused on a single, discrete issue—such as medication cost-sharing assistance. When you have a neurodegenerative disease and need a wide variety of services—ranging from a home health aide and speech therapy to insurance premium subsidies and financial planning services—while also taking care of your children, spouse or parents, navigating this confusing, fragmented system can be paralyzing and lead to feelings of isolation and depression, both for patients and their family members.

With a founder and board who knows well the success of global health approaches like the United Nations system and the Global Fund to Fight AIDS, Tuberculosis and Malaria, Adira believes more collaborative work and financing, along with community building can help what’s already out there and working.

Adira will reflect the best of global health practices:

  • We will convene each key group of people working toward solutions.
  • We will work in collaboration with these groups.
  • The community served will set the priorities.
  • We’ll operate with new, larger, more collaborative funders.

Adira - people running in race

By joining patients and caregivers living with different neurodegenerative diseases, and by reaching across the private, public, and nonprofit sectors, Adira will find inventive ways to tackle complex problems.

From a higher altitude—above the disease-specific fray—some problems, and therefore some solutions, become more visible.

We will begin by talking with patients and caregivers. We want to learn from as many as possible about existing gaps in services and access to services. Informed by these discussions, Adira will provide grants to organizations committed to creatively filling these gaps, and develop patient navigational tools to improve access to services.

It means more support, less isolation, and greater well-being. When patients are heard, when organizations act, and when the path between the two is made a little straighter and a little clearer, the journey is much more hopeful.

Offer your suggestions and stories, donate, or be in touch about partnering.

Sign up to learn more as things unfold.

If you or a loved one are part of one of our target communities, and you’d like to share your experiences, email communications@adirafoundation.org to let us know.

Donate online here. If you’re interested in partnering or funding opportunities, email: info@adirafoundation.org.