Dear friend,

Thank you for your interest in Adira Foundation.

At Adira, we believe that life for most people is isolating and scary when it comes to threats to our health. Serious, complex illnesses are usually handled in silos. These silos rob us of time, energy, confidence, money and connections to others. Breaking down these silos is the problem we’re attempting to solve.

Adira - Grey Smiley, CEO Headshot
Greg Smiley, CEO

A big part of the problem is the way programs are built to solve one need or address one diagnosis, without the point of view of the person impacted. For those with monstrous diagnoses like neurodegenerative diseases, needs mushroom from one or two to a dozen or more quickly.

We take diseases like ALS, Alzheimer’s and related dementias, Huntington’s disease, multiple sclerosis and Parkinson’s disease out of isolation. We focus on those dozens of issues that people dealing with those diagnoses share. In a pledge to listen and learn before we act, we ask people what they need but are not getting and we fund what’s most important to them.

We base our model from successful largescale integrated health programs, like those for infectious diseases like HIV and tuberculosis, which have transformed care both in the U.S. and around the world. We apply those lessons in order to build an additional, complementary layer of common, general help on top of what already exists for specific concerns.

In our first 18 months of programming, we have already funded projects on caregiving, navigation, life after work, and many other issues based from what we heard from the people these diseases most impact. We are now in our third round of competitive grants, our second year of demonstration projects and a ceaseless campaign to listen and cultivate stories.

I survived a devastating high-speed cycling accident in South Africa in 2013. I needed 12 reconstructive surgeries bundled with patience, friends, family, guidance, colleagues and grit. Even with an abundance of resources and privilege, I barely got through, hanging by my fingertips multiple times.

Now as I help care for family with two neurodegenerative diseases, I confirm that my struggle as a patient is almost universally common.

Our model is special, but it is not unproven. It will only get even stronger with as many minds, dollars, hearts and voices as we can gather.

We need you. Together we unite in care for the common good.

With love and invitation,

Adira - Grey Smiley, CEO Signature

Greg Smiley
Founder, CEO
Adira Foundation